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X-WR-CALNAME:EPI | Empowering People's Independence
X-ORIGINAL-URL:https://www.epiny.org
X-WR-CALDESC:Events for EPI | Empowering People's Independence
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251119T180000
DTEND;TZID=America/New_York:20251119T190000
DTSTAMP:20260105T033750
CREATED:20250926T134847Z
LAST-MODIFIED:20251006T184645Z
UID:10494-1763575200-1763578800@www.epiny.org
SUMMARY:Brain Injury Basics: Partnering with Parents
DESCRIPTION:Join us for the last of a series of three informative webinars for Parents/Caregivers on brain injuries. \nThis webinar will be structured as a conversation and cover the following topics: \n\nUnderstanding the role of social communication in brain injury recovery\nDiscussion of community resources utilizing the social collaboration model\nRecommended books \,workbooks\, and other resources for parents\n\nOur speaker is Kimberly Cicherillo\, Community Integration Counselor at EPI. \nThis webinar is for parents\, caregivers\, and community members who are interested in learning more about neurodiverse brains and brain injuries. \nRegister in advance for the Zoom link: https://us02web.zoom.us/meeting/register/lemqBHuTTTmr65URKLWxgQ \nBio for Kimberly: \nKimberly has been working within the healthcare and human services community for over 30 years. She earned her master’s degree in social work with a concentration in Child and Family in 2004 from Roberts Weslyan University and has completed 34 course credit hours toward her doctorate in Counseling and Human Development with a concentration in Human Development from the University of Rochester-Warner School. Kimberly has extensive knowledge of home and community-based services/supports within the Greater Rochester area. Additionally\, with many years of experience both in OPWDD and DOH (TBI and NHDT) waiver services and supports\, Kimberly holds certifications in both positive behavioral intervention strategies (PBIS) from the Neurobehavioral Resource Project Apprenticeship Program (completion in 2012) and Strategies for Crisis Intervention and Prevention (SCIP)-Instructor-Train the Trainer program in 1997. \nIn her passion for community\, service\, learning\, collaboration and working with others of all ages and needs\, Kimberly’s held different positions and worn many hats in her career along the way; from- Community Integration Counselor\, Direct Support Professional (DSP)\, Quality Intellectual Disability Professional ( QIDP)\, Program and Clinical support coordinator\, Medicaid Service Coordinator\, Chemical Dependency Counselor\, Program Development Coordinator and Supervisor\, Program Director of- In home Behavioral Supports\, Corporate Compliance and Quality Assurance officer and Staff development trainer (human growth development\, SCIP\, culture and diversity). \nKimberly values self-advocacy\, a solution-focused\, strength-based\, person-family centered and humanistic perspective that is woven into her work ethic and life balance philosophy while loving every minute of being a part of other people’s life story and journey toward greater independence and empowerment.
URL:https://www.epiny.org/event/brain-injury-basics-partnering-with-parents/
CATEGORIES:Virtual,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250818T180000
DTEND;TZID=America/New_York:20250818T190000
DTSTAMP:20260105T033750
CREATED:20250728T194702Z
LAST-MODIFIED:20250728T194702Z
UID:10078-1755540000-1755543600@www.epiny.org
SUMMARY:Brain Injury Basics: Brain Injury 101
DESCRIPTION:Brain Injury 101 with A BIANYS FACTS Coordinator \nJoin us for the second of a series of three informative webinars for Parents/Caregivers on brain injuries. \nAlexis Rutty\, CBIS\, FACTS Coordinator for the Brain Injury Association of New York State will be presenting on the services available for individuals who have sustained a brain injury and their families. \nFACTS Coordinators are Certified Brain Injury Specialists (CBIS)—professionals trained in the field of brain injury\, with extensive knowledge and experience working within the brain injury community. \nThis webinar is for parents\, caregivers\, and community members who are interested in learning more about brain injuries. \nRegister in advance for the Zoom link: https://us02web.zoom.us/meeting/register/eyHlNtPaSmWu_a1L7DBImg \n  \n 
URL:https://www.epiny.org/event/brain-injury-basics-brain-injury-101/
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250716T180000
DTEND;TZID=America/New_York:20250716T190000
DTSTAMP:20260105T033750
CREATED:20250623T190424Z
LAST-MODIFIED:20250623T190602Z
UID:9841-1752688800-1752692400@www.epiny.org
SUMMARY:Epilepsy Webinar: Deep Brain Stimulation
DESCRIPTION:Join us for an informative webinar from Medtronic on Deep Brain Stimulation\, an epilepsy surgery option. Matthew Schneider\, Therapy Representative for Upstate NY\, from Medtronic will be presenting. \nRSVP in advance for Zoom link: https://us02web.zoom.us/meeting/register/lpB1Jh5UR4-bQ0Mu6bvdpg \nWebinar is for informational purposes only. Always consult with your medical care team about new treatments. \n  \n 
URL:https://www.epiny.org/event/epilepsy-webinar-deep-brain-stimulation-2/
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250716T120000
DTEND;TZID=America/New_York:20250716T130000
DTSTAMP:20260105T033750
CREATED:20250623T172503Z
LAST-MODIFIED:20250623T190458Z
UID:9837-1752667200-1752670800@www.epiny.org
SUMMARY:Epilepsy Webinar: Deep Brain Stimulation
DESCRIPTION:Join us for an informative webinar from Medtronic on Deep Brain Stimulation\, an epilepsy surgery option. Matthew Schneider\, Therapy Representative for Upstate NY\, from Medtronic will be presenting. \nRegister in advance for the Zoom link: https://us02web.zoom.us/meeting/register/2BW5sNRvRLqPBFrZinHVMw \n  \nWebinar is for informational purposes only. Always consult with your medical care team about new treatments.
URL:https://www.epiny.org/event/epilepsy-webinar-deep-brain-stimulation/
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250618T180000
DTEND;TZID=America/New_York:20250618T190000
DTSTAMP:20260105T033750
CREATED:20250528T174958Z
LAST-MODIFIED:20250528T174958Z
UID:9801-1750269600-1750273200@www.epiny.org
SUMMARY:An Overview of Traumatic Brain Injuries for Parents/Caregivers
DESCRIPTION:Join us for an informative webinar for Parents/Caregivers on brain injuries with Renee Madathil\, PhD who is a UR Medicine Rehabilitation Neuropsychologist and current EPI Board Member. \nThis webinar will cover the following topics: \n\nBrain injury overview including the different levels of severity\nCommon behavior\, emotional\, and cognitive challenges that can happen post-injury\nSpecial considerations for the I/DD population\nResources for support and more information\n\nThis webinar is for all parents/caregivers who are interested in learning more about brain injuries. \nRegister in advance for the Zoom link at https://us02web.zoom.us/meeting/register/77SGmtv_RNKRdu23y-ScoQ
URL:https://www.epiny.org/event/an-overview-of-traumatic-brain-injuries-for-parents-caregivers/
CATEGORIES:Virtual,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250429T180000
DTEND;TZID=America/New_York:20250429T190000
DTSTAMP:20260105T033750
CREATED:20250331T153750Z
LAST-MODIFIED:20250331T154105Z
UID:9660-1745949600-1745953200@www.epiny.org
SUMMARY:Camp Information Session
DESCRIPTION:Interesting in learning more about our summer camp for children with epilepsy\, aged 8-17 and their siblings? Come meet our Camp Director and other staff. This event is perfect for families who are unsure about sending their child to summer and for those new families registered for the 2025 Summer Camp session. \nRSVP for Zoom link: https://us02web.zoom.us/meeting/register/CQOTlsL3QOS2xwY3gtJG7Q \nIn the meantime\, check out this short video about the impact this program had on one of our campers and their family. \nVideo: Ian’s Story \nQuestions? Contact Michael Radell at (585) 442-4430 x2741 or mradell@epiny.org.
URL:https://www.epiny.org/event/camp-information-session/
CATEGORIES:Virtual,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250422T180000
DTEND;TZID=America/New_York:20250422T190000
DTSTAMP:20260105T033750
CREATED:20250331T152955Z
LAST-MODIFIED:20250404T142741Z
UID:9658-1745344800-1745348400@www.epiny.org
SUMMARY:Virtual Training: Seizure Recognition and First Aid
DESCRIPTION:Join us for an instructor-led virtual training on Seizure Recognition and First Aid geared toward the general population!  Anyone can take this training. This training will cover the following topics: \n\nHow common epilepsy and seizures are plus the wide spectrum of seizure types.\nHow to recognize and respond to the most common seizure types\nWhen seizures are an emergency and when they are not\nTreatment options\nServices available for people with epilepsy.\n\nRSVP for Zoom link: https://us02web.zoom.us/meeting/register/NHWnrNSQTCmLvFhidJDaxw \nQuestions? Contact Collin Horak at (315) 477-9777 x2904 or chorak@epiny.org
URL:https://www.epiny.org/event/virtual-training-seizure-recognition-and-first-aid-2/
CATEGORIES:Virtual,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250422T120000
DTEND;TZID=America/New_York:20250422T130000
DTSTAMP:20260105T033750
CREATED:20250331T152456Z
LAST-MODIFIED:20250404T142804Z
UID:9655-1745323200-1745326800@www.epiny.org
SUMMARY:Virtual Training: Seizure Recognition and First Aid
DESCRIPTION:Join us for an instructor-led virtual training on Seizure Recognition and First Aid geared toward the general population!  Anyone can take this training. This training will cover the following topics: \n\nHow common epilepsy and seizures are plus the wide spectrum of seizure types.\nHow to recognize and respond to the most common seizure types\nWhen seizures are an emergency and when they are not\nTreatment options\nServices available for people with epilepsy.\n\nRSVP for Zoom link: https://us02web.zoom.us/meeting/register/hn5eJV4GR2yQw5C3DNTEWg \nQuestions? Contact Collin Horak at (315) 477-9777 x2904 or chorak@epiny.org
URL:https://www.epiny.org/event/virtual-training-seizure-recognition-and-first-aid/
CATEGORIES:Virtual,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250226T180000
DTEND;TZID=America/New_York:20250226T190000
DTSTAMP:20260105T033750
CREATED:20250204T140007Z
LAST-MODIFIED:20250204T140007Z
UID:9391-1740592800-1740596400@www.epiny.org
SUMMARY:Epilepsy Webinar: Clinical Research Update
DESCRIPTION:Join us for a Clinical Research Update in Epilepsy with Cate Concannon\, MPH\, Clinical Research Coordinator at UR Medicine. Cate will provide an overview of what clinical research is\, review current trends in epilepsy research\, and talk about local studies. \nRegister via Zoom: https://us02web.zoom.us/meeting/register/JA0ce1ScRRa3WYVFOEa6yg
URL:https://www.epiny.org/event/epilepsy-webinar-clinical-research-update/
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241218T180000
DTEND;TZID=America/New_York:20241218T190000
DTSTAMP:20260105T033750
CREATED:20231220T170745Z
LAST-MODIFIED:20241008T164125Z
UID:7623-1734544800-1734548400@www.epiny.org
SUMMARY:Epilepsy Education: Seizure Recognition and Response
DESCRIPTION:Join EPI’s very own Collin Horak and get seizure first aid trained! \nRSVP for Zoom link: https://us02web.zoom.us/meeting/register/tZIqcumorTwtGNOip61MgCopA9t7fockoehX
URL:https://www.epiny.org/event/epilepsy-education-topic-tbd-4/
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241116T090000
DTEND;TZID=America/New_York:20241116T130000
DTSTAMP:20260105T033750
CREATED:20240911T193006Z
LAST-MODIFIED:20240911T193006Z
UID:8778-1731747600-1731762000@www.epiny.org
SUMMARY:2024 Statewide Epilepsy Conference: Empowering People with Epilepsy
DESCRIPTION:Join our 3rd annual NYS-wide Epilepsy Conference. Virtual and in-person options available. Topics include: Epilepsy & Genetics\, Epilepsy Self-Management Programs\, Current Treatment Options in Epilepsy\, and Legislative Advocacy. \nRegister today at: https://epiny.ejoinme.org/2024NYSEpilepsyConference
URL:https://www.epiny.org/event/2024-statewide-epilepsy-conference-empowering-people-with-epilepsy/
CATEGORIES:In Person,Virtual,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241016T180000
DTEND;TZID=America/New_York:20241016T190000
DTSTAMP:20260105T033750
CREATED:20231220T170745Z
LAST-MODIFIED:20241008T164041Z
UID:7622-1729101600-1729105200@www.epiny.org
SUMMARY:Epilepsy Education: Ask Me Anything Epilepsy with Dr. Robert Gross
DESCRIPTION:Come prepared with your epilepsy-related questions! Dr. Robert Gross\, professor emeritus from the University of Rochester Medical Center answers your questions on epilepsy. \nRSVP for Zoom link: https://us02web.zoom.us/meeting/register/tZIqcumorTwtGNOip61MgCopA9t7fockoehX
URL:https://www.epiny.org/event/epilepsy-ama/
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240710T180000
DTEND;TZID=America/New_York:20240710T190000
DTSTAMP:20260105T033750
CREATED:20231221T144818Z
LAST-MODIFIED:20231221T144943Z
UID:7708-1720634400-1720638000@www.epiny.org
SUMMARY:Epilepsy Education: Rescue Medication - Nayzilam
DESCRIPTION:Join us for a presentation from UCB on Nayzilam\, NAYZILAM® (midazolam) nasal spray\, CIV is a prescription medicine used for the short-term treatment of seizure clusters (also known as acute repetitive seizures) in patients 12 years of age and older. \nRegister in advance for this webinar at https://us02web.zoom.us/meeting/register/tZIqcumorTwtGNOip61MgCopA9t7fockoehX \nNote: this webinar is for educational purposes only. EPI does not recommend specific medications or treatments.
URL:https://www.epiny.org/event/epilepsy-education-rescue-medication-nayzilam/
CATEGORIES:Webinar
ORGANIZER;CN="Empowering People's Independence":MAILTO:events@epiny.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240515T180000
DTEND;TZID=America/New_York:20240515T190000
DTSTAMP:20260105T033750
CREATED:20231220T170744Z
LAST-MODIFIED:20240416T183804Z
UID:7617-1715796000-1715799600@www.epiny.org
SUMMARY:Epilepsy Education: VNS Therapy
DESCRIPTION:Join us for an informative talk on VNS Therapy by Dr. Robert Glover from Erie County Medical Center. Register via Zoom: https://us02web.zoom.us/meeting/register/tZIqcumorTwtGNOip61MgCopA9t7fockoehX \nVNS Therapy™ is a neuromodulation treatment designed for people with drug-resistant epilepsy 4 years of age and older with partial onset seizures. It can safely lead to fewer and shorter seizures and better recovery after seizures. \nThis talk is sponsored by LivaNova and is for educational purposes only. EPI does not recommend specific epilepsy therapies. Talk to your doctor to see if VNS is right for you.
URL:https://www.epiny.org/event/epilepsy-education-topic-tbd-2/
CATEGORIES:Virtual,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240510T120000
DTEND;TZID=America/New_York:20240510T130000
DTSTAMP:20260105T033750
CREATED:20240416T181536Z
LAST-MODIFIED:20240416T181536Z
UID:8390-1715342400-1715346000@www.epiny.org
SUMMARY:Webinar: Valtoco to the Rescue
DESCRIPTION:Learn about Valtoco – a seizure rescue medication option for adults and children with epilepsy aged 6 years and older with this informative presentation by Dr. Timothy Lynch from Albany Medical College. Register via Zoom: https://us02web.zoom.us/meeting/register/tZYqcuqgqz4tG9bousgQYfoORF7uNWjkcO4Z \nPresentation goals include: \n\nLearn about episodes of frequent seizures (2 or more seizures in 24 hours that are different from usual seizures) and why you should always carry an on-hand seizure rescue treatment.\nDiscover the important of having a Seizures Action Plan\, how to create one\, and must-have resources to help along the way.\nGet to know Valtoco – a nasal spray seizure rescue medication for adults and children with epilepsy\, aged 6 and older.\n\nPresentation sponsored by Neurelis. This webinar is for educational purposes only. EPI does not endorse specific medications. Please talk to your doctor to see if and which seizure rescue medication is right for you.
URL:https://www.epiny.org/event/webinar-valtoco-to-the-rescue/
CATEGORIES:Virtual,Webinar
END:VEVENT
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